Report on the Needs Assessment


Appendix 6. Numbers and Demographic Breakdown of Interviews

Numbers

Individual interviews with written questionnaire (30 to 60 minutes)

  Dialysis Oncology Hematology Pre-Op Centre Other (CLSC) TOTAL
Patients 19 8 8   35
Caregivers 1 4 5   10
Support Staff1 3 2 1   6
Health Care Workers2 4 3 4 4 15

1Support staff included one patient attendant, one dialysis technician, one head secretary, one clinic coordinator, one admitting officer and one interpreter. We chose support staff members who have a lot of contact with patients and families.
2Health care workers included 10 nurses, 2 dietitians, 2 social worders, and 1 pharmacist. Of the 4 CLSC worders, two were from CLSC Côte-des-Neiges, and two from CLSC Metro Guy.

CLSC informants
The two CLSCs (Metro Guy and Côte-des-Neiges) were interested in our study and very cooperative. They wish to collaborate further on the issue of patient education in the future. CLSC Côte-des-Neiges includes a large research centre specializing in the health of ethno-cultural communities. We were able to interview a Cree interpreter.


Gender

Gender breakdown of participants

  Patients1 Caregivers2 Support Staff Health Care Workers
Male 23 (66%) D---12 5 (50%) 4 (66%) 2 (13%)
O---6
P---5
Female 12 (34%) D---7 5 (50%) 2 (34%) 13 (87%)
O---2
P---3

1This column shows the breakdown of male and female patients across the three hospital units: D = Dialysis; O = Oncology Hematology; P = Pre-op Centre.
2 Of the 10 caregivers, 5 were male (of these, two were husbands and three sons of patients) and 5 female (including four spouses and one patient's daughter).


Average age

Age breakdown of participants

  Patients1 Caregivers2 Support Staff Health Care Workers
Average Age 63 D-63 55.5 S-71 31.5 38
O-7 C-40
P-60

1 This column shows the average age of patients in each hospital unit: D = Dialysis; O = Oncology Hematology; P = Pre-op Centre.
2 This column shows the average age of all of the caregivers (55.5 years), and the average age when divided into two groups: S = Spouses; C = Children of patients.

The average age of the patients interviewed is quite high (63). This reflects the fact that there is a higher proportion of hard-to-reach patients among seniors. It also reflects a high average age for all patients in the Dialysis and Oncology Hematology Units. The average age of all Dialysis patients was 6111. The average age of a sample of 37 Oncology Hematology patients was also 6112 Support staff and health care workers are, by contrast, relatively young.


First languages

Patients in all units: 35

  English French Other
Dialysis 7 (37%) 3 (16%) 9 (47%)
Oncology Hematology 2 (25%) 1 (12.5%) 5 (62.5%)
Pre-Op Centre 2 (25%) 2 (25%) 4 (50%)
TOTAL 11 (31%) 6 (17%) 18 (51%)

Other first languages: 18 patients

  Italian Greek Spanish Cree Other
Dialysis 2   3 1 Hindi 1
Filipino 1
Arabic 1
Oncology Hematology 2 2     Hungarian 1
Pre-Op Centre   1   1 Cantonese 1
Persian 1
TOTAL 4 3 3 2 6

Caregivers (10), support staff (6), and health care workers (15)

  English French Other
Caregivers 4 (40%)   6 (60%) Italian 3
Hungarian 1
Bengali 1
Punjabi 1
Support Staff 3 (50%) 1 (17%) 1 (17%) Cree 1
Bilingual 1 (17%)
Health Care Workers 6 (40%) 6 (40%) 3 (20%) Chinese 1
Spanish 1
Vietnamese 1

Employment status of patients

Patients in all units: 35

  Retired Don't Work/ Stay Home Disability Work Outside Home 1 Other (N/A)
# of Patients 20 (59%) 8 (23%) 5 (15%) 2 (6%) 1 (3%)

1Of the two patients who work, one works full-time, the other part-time.

The large majority of patients are not working outside the home. They are either retired, at home or on disability. This reflects the facts that informants were elderly (average age of 63) and that many of them were very sick (54% on dialysis) and could not work.



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